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"Back to life" project results: 385 narratives between EBM and Narrative Medicine

“Back to life” project was born with the aim of quantifying myelofibrosis “burden of illness” in Italy, that is the disease impact on patients and relatives, in not only physical, but also emotional, psychological, economic and social terms.

Research was conducted means a combined use of quantitative tools, from the Evidence-Based approach (multiple-choice questionnaire with a section dedicated to Caregiver self-assessment questionnaire validated by AMA), and qualitative tools, from the Narrative Medicine approach (semi-structured narrative plot), to give people the possibility to narrate their illness experience.

This methodology, inclusive of both approaches, allowed not only to quantify investigated cases, but, through the narrative analysis, also to go beyond numbers to understand and to examine in depth details relative to patient’s and caregivers’ experience.

“Back to life” project general report (in italian)

Narratives of patients with myelofibrosis (in italian)

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Degree in Political Science, Master in Health Management at SDA Bocconi in Milan. He developed research project, training and consultancy in healthcare organizations. He is professor of organization and health politics. In recent years he focused his interest on sustainability and personalization of care through the narrative approach. He has authored various project research, articles and essays on these topics. He is Director of the Health Area of the ISTUD Foundation, member of the Board of the Italian Society of Narrative Medicine.

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